Informational Links

Below are the links the Family Advisory Board recommends for information and networking on CF. Beware of some of the information about CF on the web can be dated or inaccurate. There have been many current advances in the field of CF and many documents on the web are 10 years or more old and paint a picture that is not currently accurate or misleading. The recommended sites display the most current and accurate information in the opinion of the board you can find:

Cystic Fibrosis Foundation

CF Services Pharmacy

CF Scholarship Foundation

Make a Wish Foundation

Northern New England Cystic Fibrosis Consortium

Digestive Care Inc. Educational Site


Axcan Scandipharm Educational Site

CF Voice

Patient Assistance Foundation, LLC


The Northern New England Cystic Fibrosis Consortium