Informational Links

Below are the links the Family Advisory Board recommends for information and networking on CF. Beware of some of the information about CF on the web can be dated or inaccurate. There have been many current advances in the field of CF and many documents on the web are 10 years or more old and paint a picture that is not currently accurate or misleading. The recommended sites display the most current and accurate information in the opinion of the board you can find:

Cystic Fibrosis Foundation
www.cff.org

CF Services Pharmacy
www.cfservicespharmacy.com

CF Scholarship Foundation
www.cfscholarship.org

Make a Wish Foundation
www.wish.org

Northern New England Cystic Fibrosis Consortium
www.nnecfc.org

Digestive Care Inc. Educational Site
www.digestivecare.com

Respirtech
www.respirtech.com

Axcan Scandipharm Educational Site
www.axcanscandipharm.com

CF Voice
www.CFvoice.com

Patient Assistance Foundation, LLC
www.CFPAF.org

Cysitic Fibrosis.com
www.CysticFibrosis.com

The Northern New England Cystic Fibrosis Consortium
http://www.nnecfc.org/index.html